Monday, April 2, 2007
Greetings,
I know it has been almost a week since I typed here and I am sorry, particularly for those of you out of town that rely on this for your only information. When we are in Indy I have more time, but when we are home I keep on the go and this kind of goes to the back burner and does not get done. So, I wanted to make a point to bring you up to speed today.
Marty is not feeling very good. She is hurting all over, her left clavicle and shins are particularly bad. Her ankles are also pretty bad from “fluid” retention and when she walks she thinks she is moving a couple of cement filled shoes. Her back and hip are also giving her a lot of discomfort, particularly when she is up and around. The tiredness is also still around. The other night she went to Kokomo shopping and was only able to be gone for 2 hours, with an hour of that being the travel time: after an hour in the store she could just not do anymore. Finally, she has another “infection” in her sinuses and bronchial tubes. This is the second one of these that she has had since she last got out of the hospital. We understand that MDS is really known for having lots of infections. The medication that she is on this time is a big old “horse pill” that has a very, very bad taste, so she puts it in peanut butter before she takes it; she said that it slides right down and the peanut butter doesn’t taste bad at all. So, Marty is pushing on, Praise the Lord!
Last Wednesday we met with a transplant doctor and came up with a list of about 7 options that Marty has at this time. We talked about the pros and con’s of each and ruled some out right away so that there are only 2 - 3 that are really options. Never-the-less, for your information here is the list of the seven.
1. Do nothing at all.
2. Only do the transfusions as they become needed. (It has been about 2 months since Marty has had to have one now.)
3. Take the pill that Dr. Lee had mentioned at our last appointment. Dr. Akard said that it is not really meant for the type of MDS that Marty has, therefore would not really help and may even make her worse.
4. Get involved in some test experiments – but he did not know of any that would apply.
5. Do a chemo remission induction like she had before right now and see if it will put her back in remission.
6. Do a chemo remission induction like she had before when she gets worse and has to have transfusions, etc.
7. Have the bone marrow transplant.
Will not go into all the reasons, but right now we are kind of leaning on # 6 but waiting to get the blood work on Wednesday and talk to Dr. Lee about a couple of things. Please be praying that we are indeed discerning God’s will.
This is such an important week for our faith and commitment to our awesome God. It is the week that we annually remember and celebrate His great love and grace for each one of us. Without this week where would we be? With this week we know that God loves each of us so much that He gave His one and only Son to die on the cross for your and my sins, so that we might have life eternal with Him. Praise the Lord! God is so good – all the time! All the time – God is so good. It is this week that gives us, Marty and I, the hope and confidence to travel the path that we are presently on. It does not mean that we asked for this path, because like Jesus we have asked that the cup could be passed by us at this time, but at the same time it is not our will but God’s will that will be done. And with God’s will, we know already about His grace in Jesus Christ and our salvation, we also know about His grace in this life that is so awesome and has already been experienced so many ways in our lives. So, we ask again if it be God’s will that we may experience His grace and know that whatever His will, He will be glorified. Praise and thanks be to God.
We pray that during this Passion Week and Easter Season you will experience God’s presence, love, and grace in your life and know His will for you, that God may be glorified.
Have a positive week and God bless.
Marty and Jack
John 3:16
Greetings,
I know it has been almost a week since I typed here and I am sorry, particularly for those of you out of town that rely on this for your only information. When we are in Indy I have more time, but when we are home I keep on the go and this kind of goes to the back burner and does not get done. So, I wanted to make a point to bring you up to speed today.
Marty is not feeling very good. She is hurting all over, her left clavicle and shins are particularly bad. Her ankles are also pretty bad from “fluid” retention and when she walks she thinks she is moving a couple of cement filled shoes. Her back and hip are also giving her a lot of discomfort, particularly when she is up and around. The tiredness is also still around. The other night she went to Kokomo shopping and was only able to be gone for 2 hours, with an hour of that being the travel time: after an hour in the store she could just not do anymore. Finally, she has another “infection” in her sinuses and bronchial tubes. This is the second one of these that she has had since she last got out of the hospital. We understand that MDS is really known for having lots of infections. The medication that she is on this time is a big old “horse pill” that has a very, very bad taste, so she puts it in peanut butter before she takes it; she said that it slides right down and the peanut butter doesn’t taste bad at all. So, Marty is pushing on, Praise the Lord!
Last Wednesday we met with a transplant doctor and came up with a list of about 7 options that Marty has at this time. We talked about the pros and con’s of each and ruled some out right away so that there are only 2 - 3 that are really options. Never-the-less, for your information here is the list of the seven.
1. Do nothing at all.
2. Only do the transfusions as they become needed. (It has been about 2 months since Marty has had to have one now.)
3. Take the pill that Dr. Lee had mentioned at our last appointment. Dr. Akard said that it is not really meant for the type of MDS that Marty has, therefore would not really help and may even make her worse.
4. Get involved in some test experiments – but he did not know of any that would apply.
5. Do a chemo remission induction like she had before right now and see if it will put her back in remission.
6. Do a chemo remission induction like she had before when she gets worse and has to have transfusions, etc.
7. Have the bone marrow transplant.
Will not go into all the reasons, but right now we are kind of leaning on # 6 but waiting to get the blood work on Wednesday and talk to Dr. Lee about a couple of things. Please be praying that we are indeed discerning God’s will.
This is such an important week for our faith and commitment to our awesome God. It is the week that we annually remember and celebrate His great love and grace for each one of us. Without this week where would we be? With this week we know that God loves each of us so much that He gave His one and only Son to die on the cross for your and my sins, so that we might have life eternal with Him. Praise the Lord! God is so good – all the time! All the time – God is so good. It is this week that gives us, Marty and I, the hope and confidence to travel the path that we are presently on. It does not mean that we asked for this path, because like Jesus we have asked that the cup could be passed by us at this time, but at the same time it is not our will but God’s will that will be done. And with God’s will, we know already about His grace in Jesus Christ and our salvation, we also know about His grace in this life that is so awesome and has already been experienced so many ways in our lives. So, we ask again if it be God’s will that we may experience His grace and know that whatever His will, He will be glorified. Praise and thanks be to God.
We pray that during this Passion Week and Easter Season you will experience God’s presence, love, and grace in your life and know His will for you, that God may be glorified.
Have a positive week and God bless.
Marty and Jack
John 3:16
posted by Jack | 7:26 PM
1 Comments:
Marty & Jack,
You both continue to be in our thoughts & prayers. You both never cease to amaze me how positive and strong you are.
Love, Maureen, Troy, Hilary & Brooke
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